At Golden Companions, we understand the unique challenges families face when caring for a loved one with dementia. One of the biggest decisions you'll make is where your loved one will receive care. While many people with dementia express a strong desire to age in place – remain in their familiar home – this can be a complex issue.
A recent study published in the Journal of the American Geriatrics Society sheds light on the reasons why aging in place is so appealing and the challenges families face in making this a reality. The good news? There are ways to navigate this journey and ensure your loved one receives the care they need while feeling comfortable and safe.
The Desire for Independence and Familiarity
The study, titled ““What Choice Do We Have?” Reactive and Proactive Decision-Making for Aging in Place With Dementia,” found that several factors influence the decision to age in place. A key motivator is the desire to preserve the independence of the person with dementia. Many individuals with dementia, particularly in the early stages, cherish their autonomy and feel a sense of security in their own homes.
Family members often share this sentiment, believing they can provide the best care in a familiar environment. Additionally, some families express distrust or fear of residential facilities, further reinforcing their preference for home care.
The Importance of Including the Person with Dementia
The study also highlights the importance of including the person with dementia in the decision-making process, whenever possible. One participant stated, "I wanna keep my independence as long as I can. I wanna be able to do what I wanna do when I wanna do it… So, as long as we can be here [at home] and be independent, it’s fine."
Their voice matters. Understanding their desires and fears can help families make informed choices about care.
Challenges and Realities
Unfortunately, the study also reveals the limitations of aging in place. Changes in the person's needs or the caregiver's ability to provide care often necessitate a transition to a residential facility. These decisions are often reactive and filled with a sense of urgency, triggered by safety concerns, increased physical dependence, or caregiver burnout.
The Financial Burden
The study emphasizes the significant financial burden placed on families. Many lack the resources to make necessary home modifications or secure affordable in-home care services. This can lead to families delaying or avoiding important decisions about care, ultimately creating additional stress for everyone involved.
What You Can Do
At Golden Companions, we believe that informed families are empowered families. Here are a few tips to help you navigate the decision-making process:
Start Planning Early: Don't wait for a crisis to make crucial decisions. Educate yourself about dementia and the various care options available.
Consider All Options: Explore the benefits and drawbacks of both in-home care and residential facilities. Be realistic about your loved one's needs and your ability to meet them.
Communicate Openly: Talk to your loved one about their wishes and concerns. Involve other family members in the conversation.
Seek Professional Guidance: A geriatric care manager or social worker can provide valuable advice and resources.
Golden Companions Can Help
Golden Companions offers a range of compassionate in-home care services designed to meet the needs of individuals with dementia and their families. Our skilled and dedicated caregivers can provide assistance with daily living activities, medication management, and companionship. We can also help you navigate the complexities of the healthcare system and connect you with valuable resources.
Don't feel overwhelmed. Contact Golden Companions today at (305) 239-7483 to learn more about how we can help your loved one with dementia thrive in the comfort and familiarity of their own home.
Together, we can create a care plan that supports your loved one's needs and preferences, while providing peace of mind for you and your family.
Additional Resources:
Journal of the American Geriatrics Society: https://agsjournals.onlinelibrary.wiley.com/journal/15325415
Alzheimer's Association: https://www.alz.org/
Family Caregiver Alliance: https://www.caregiver.org/
By working together, we can ensure that individuals with dementia receive the care they need and deserve.
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